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Case Report
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| Psychosocial interventions in a case of fibrodysplasia ossificans progressiva: A case report | ||||||
| Manisha Jha1, Ruchi Varma Shanker1, Anand Kumar2, Tej Bahadur Singh3 | ||||||
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1Clinical Psychologist, Institute: Institute of Human Behaviour and Allied Sciences, Delhi, India.
2Occupational Therapist, Institute: Institute of Human Behaviour and Allied Sciences, Delhi, India. 3Professor in Clinical Psychology, Institute: Institute of Human Behaviour and Allied Sciences, Delhi, India. | ||||||
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| How to cite this article: |
| Jha M, Shanker RV, Kumar A, Singh TB. Psychosocial interventions in a case of fibrodysplasia ossificans progressiva: A case report. International Journal of Case Reports and Images 2013;4(2):115–119. |
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Abstract
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Introduction:
The developmental needs and challenges of children with chronic illness are different from those of a normal childhood. Moreover, rare disease with no effective treatment option and poor prognosis is devastating for parents also.
Case Report: This case report aims to present guided sustained adaptation of a child from India who was diagnosed as a case of fibrodysplasia ossificans progressiva. The child and her parents were referred for psychological intervention in view of rare genetic disease to facilitate positive health. A detailed assessment and psychological intervention was done by trained clinical psychologist. Conclusion: The case report highlighted that caring relationship, formulation of positive meanings about the illness and an opportunity to seek help along with promoting the strengths of the child while she was undergoing a negative experience facilitated child's capacity for innovative survival and ability to resist adversities. | |
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Keywords:
Fibrodysplasia ossificans progressiva (FOP), Well being, Psychological intervention
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Author Contributions
Manisha Jha – Substantial contributions to conception and design, Acquisition of data, analysis and interpretation of data, Drafting and revising article critically for important intellectual content; and Final approval of the version to be published Ruchi Varma Shanker – Substantial contributions to conception, design and acquisition of data, Drafting the article for important intellectual content; and Final approval of the version to be published Anand Kumar – Substantial contributions to conception and design, acquisition of data and interpretation of data, Drafting the article and revising it critically for important intellectual content; and Final approval of the version to be published Tej Bahadur Singh – Substantial contributions to conception and design, Drafting the article for important intellectual content; and Final approval of the version to be published |
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Guarantor of submission
The corresponding author is the guarantor of submission. |
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Source of support
None |
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Conflict of interest
Authors declare no conflict of interest. |
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Copyright
© Manisha Jha et al. 2013; This article is distributed the terms of Creative Commons attribution 3.0 License which permits unrestricted use, distribution and reproduction in any means provided the original authors and original publisher are properly credited. (Please see Copyright Policy for more information.) |
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